LATEST NEWS

NEWS UPDATE:


7th National Patient Reported Outcome Measure (PROMs) Annual UK Research Conference


The University of Sheffield, along with their partners are hosting the 7th National Patient Reported Outcome Measures (PROMs) Research Conference ‘PROMs Across the Lifespan’, at The University of Sheffield on Thursday 22nd June 2023.


The ‘Call for Papers’ has been launched, along with the website to book your conference place. Abstracts to be received by 11:59pm on Monday 13th February 2023.


The event is ‘a not-for profit conference’ and offered at a fee of £50.



ReQoL 10 Visualisation Tool – available online


At the ReQoL Community of Practice event in October 2019, participants expressed an interest in using ReQoL data visualisations to enhance meaningful clinical conversations. In response to this request, we have been working to develop and test a Recovering Quality of Life Questionnaire (ReQoL-10) online visualisation tool. We are pleased to announce that the tool is now available online: Visualisation Tool



How to use the tool:

The tool is built around a digitally reproduced version of ReQoL-10 with the standard ten items presented in a way that retains the measurement properties of the original validated ReQoL-10 ensuring results are valid and equivalent to those gathered using the original, paper and pen version.


Users can move between items, select appropriate responses and even skip items if needed.

However, if two or more items are skipped then a valid score cannot be provided. If only one item is skipped a score at the end will be provided, but not a visualisation. If all items have been answered the final page will show:

• Overall score

• ReQoL bubble visualisation representing each theme

• Questions, answers and scores

• Total score by theme.


There is the facility to download or print the results so that they can be compared with previous scores or shared with other people. There is no facility to store data or record any personal information at all.

We are keen to hear how you use the tool and any feedback you might have from your patients/service users would be very welcome.


If you have any questions, please contact Lizzie (e.taylor-buck@sheffield.ac.uk




 5th National Patient Reported Outcome Measure (PROMs) Annual UK Research Virtual Conference


Wednesday 16th and Thursday 17th June 2021 at The University of Sheffield

https://www.sheffield.ac.uk/scharr/proms-2021


Call for Abstracts until Monday 8th February 2021

https://www.sheffield.ac.uk/scharr/news/proms-call-papers



ReQoL-20 chosen by international panel of experts for the new set of standards to measure and improve psychotic disorders globally

The International Consortium for Health Outcome Measurement (ICHOM) have announced the release of their new standard set of measures for Psychotic Disorders. As part of this new standard set, the Recovering Quality of Life outcome questionnaire (ReQoL-20) has been chosen as the measure for tracking 3 aspects of psychotic disorders – Quality of Life, Personal recovery, and Positive and negative symptoms.

The ICHOM Standard Set for Psychotic Disorders is the result of hard work by an international group (from Europe, the Americas, Asia and Australia) of leading psychiatrists, psychologists, mental health experts, measurement experts, and service user experts. The new standard set represents the outcomes that matter most to adults and adolescents (age 12 upwards) with psychosis. This marks an important step towards promoting data quality and availability whilst strengthening mental health care for this group.


ReQoL now included in the National Clinical Content Repository to help further support mental health conditions and the collection of national data-sets from NHS trusts all around the UK.

In the spring of 2019, our team was approached by the Copyright Licensing Service of the National Clinical Content Repository, operated by NHS Digital to enquire about entering a licence for two of our measures, the Versus Arthritis Musculoskeletal Health Questionnaire (MSK-HQ) and the Recovering Quality of Life (ReQoL) Questionnaire. 


The main aim of the library is to make clinical assessment tools and outcome measures, easier to sublicense and implement within routine healthcare and to ensure the collection of national data-sets from NHS trusts all around the UK. The measures are respectively in the Community Service and Mental Health Data Sets. The National Data Sets gather experimental statistics that are compiled into reports (CSDS and MHSMS) which help inform public policy choices in health and social care. The impact of our measures on the health and wealth of society is clearly represented by the choice by NHS England to include them in their toolbox.


To date this has allowed a number of sub licences to be concluded and they represent a range of NHS Trusts, Charities or Social Enterprises or Community Interest Companies. We are pleased to report that the logistics of collaborating with a large organisation to sublicense on our behalf have worked very well.


ReQoL Translation Library extended, further supporting mental health conditions on a global scale

The translation library of the ReQoL-20 and ReQoL-10 is steadily growing, with a total number of 18 country specific versions of the questionnaire, 4 years after the COA was developed. 10 languages have been fully validated by our team of associates and are available with a Certificate of Translation, having followed the translation methodology recommended by ISPOR Guidelines, which includes Cognitive Debriefing on 5 participants with any type of mental health condition. The remaining 8 languages were kindly provided by different teams of academics who demonstrated interest in using and translating the ReQoL. 

The most recent addition into our library has been Dutch for the Netherlands, validated and certified by OUI with the kind contribution of B.C. van Aken (Erasmus University, the Netherlands), Prof. E. de Beurs (Leiden University, the Netherlands), Prof. C.L. Mulder(Erasmus University, the Netherlands), Prof. C.M. van der Feltz-Cornelis (University of York, UK).    

A full list of translation is available through our website.


International Experts Launch a Foundational Set of Standards to Measure and Improve Psychotic Disorders Care Globally
Recovering Quality of Life Measure (ReQoL-20) chosen by an international panel of experts for the new set of standards to measure and improve psychotic disorders globally. 

 The International Consortium for Health Outcome Measurement (ICHOM) have announced the release of their new standard set of measures for Psychotic Disorders. As part of this new standard set the Recovering Quality of Life outcome questionnaire (ReQoL-20) has been chosen as the measure for tracking 3 aspects of psychotic disorders - Quality of Life, Personal recovery, and Positive and negative symptoms. HEDS's Dr Anju Keetharuth was involved in the development of the ICHOM Standard Set for Psychotic Disorders in partnership with ICHOM.
The ICHOM Standard Set for Psychotic Disorders is the result of hard work by an international group (from Europe, the Americas, Asia and Australia) of leading psychiatrists, psychologists, mental health experts, measurement experts, and service user experts. The new standard set represents the outcomes that matter most to adults and adolescents (age 12 upwards) with psychosis. This marks an important step towards promoting data quality and availability whilst strengthening mental health care for this group.

 The development of the ReQoL was led by researchers at School of Health and Related Research (ScHARR), the University of Sheffield and is exclusively available for licence from the Clinical Outcomes team at Oxford University Innovation. The ReQoL has grown rapidly in its recognition as a quality of life measure for assessment with people experiencing mental health difficulties. International recognition of the ReQoL is demonstrated by the rapid growth of the library of translations, with currently 18 available from Clinical Outcomes.
Click here to view the standard set for Psychotic Disorders on the ICHOM website.


5th National PROMS Annual UK Research Conference - Date confirmed
We have now confirmed the new date for the 2021 PROMs Conference - Thursday 17th June 2021.

University of Sheffield research feature
The ReQoL team are the focus of the University of Sheffield's current research features, for their work with ReQoL.
Click here for the full feature.



Launch of ReQoL in Practice Online Community of Practice
We are pleased to announce that the ReQoL in Practice Online Community of Practice (CoP) is now LIVE. You are welcome to join by sending an email to clahrc-heom@sheffield.ac.uk with
ReQoL CoP in the subject header, with your name and organisation.

ReQoL measures now available in Norwegian and Dutch
Click here to request your licence


ReQoL Development and Validation results are now AVAILABLE 
 Click here to view the technical report

ReQoL licences now AVAILABLE and can be requested from the Oxford University Innovation website 
Click here to request your licence

ReQoL - Official launch at Westminster
ReQoL was officially launched at Westminster, London on October 12th 2016, hosted by Paul Blomfield MP.  In the morning, the event showcased the work of the ReQoL team, with presentations on the development of the questionnaire; distribution; and the place of ReQoL in the context of the NHS Five Year Forward Plan.  In the afternoon, we conducted workshops on strategy development to consider how ReQoL can be implemented into routine clinical practice. Materials distributed including the ReQoL film are now available for download here. Some photos of the event are also found at here. 


 ReQoL licences NOW AVAILABLE (August 2016) 

We are pleased to announce that licences for ReQoL-10 and ReQoL-20 measures can now be requested (free for the NHS and publicly funded research) from the Oxford University Innovation website. Alternatively copy the following link and paste in your browser: goo.gl/kG8fUa
The press release on the launch of the ReQoL licences can be found here

Meeting of the governance groups: (April 2016)
Meetings of the ReQoL governance groups took place in Sheffield on 7th April 2016. Service users, clinicians and researchers came together to agree final selection of items that will form the short ReQoL measure.  A period of consultation is now taking place involving service users, clinicians, policy makers and researchers internationally.  

       Next Steps: 

  1. Submission of the short ReQoL measure to the Department of Health (May 2016).
  2. ReQoL will be available shortly at no cost to the NHS and for publicly funded studies in the UK (negotiations are underway with more details on our website as they emerge).  Over the summer a valuation study will be carried where preference weights will be generated for ReQoL.  This will enable use of ReQoL to generate Quality Adjusted Life Years (QALYs) in evaluation of the cost effectiveness of interventions in the area of mental health.
  3. A long version of ReQoL (20-30 items) will be finalised that will become available for use in health studies and clinical trials.


 Recruitment for the Stage 4B baseline is complete: (January 2016)


Since the start of recruitment in September 2015 over 4000 service users have completed and returned the 40 item baseline ReQoL questionnaire.  This is a fantastic response and we would like to thank everyone who has taken time to complete the questionnaire.  In addition we’d also like to thank staff involved in recruiting participants at the 20 NHS sites, 6 GP practices and voluntary sector organisations.
Service users who complete the baseline questionnaire will be invited to complete a follow-up questionnaire between 1st Dec 2015 and end Feb 2016.

 Recruitment for Stage 4B is open: (September 2015)

We are pleased to announce that recruitment of service users for ReQoL Stage 4B has started with the first participant being recruited on 1st September as scheduled.  In addition to the 14 NHS Trusts recruiting in Stage 4A we’d like to welcome an additional 7 NHS Trusts who are recruiting for the current stage; Black Country Partnership NHS Foundation Trust, Cumbria Partnership NHS Foundation Trust, Dorset Healthcare University NHS Foundation Trust, Northumberland Tyne and Wear NHS Foundation Trust, Solent NHS Trust and Southern Health NHS Foundation Trust.  We’d also like to welcome on board Making Space as a charity also recruiting for Stage 4B.

In stage 4B participants are asked to complete a 40 item baseline questionnaire followed by a follow-up questionnaire after approximately 6- 15 weeks.  Psychometric analysis of responses and consultation with the governance groups will be used to further reduce the number of items in the final 
versions.

 ReQoL parallel studies: (August 2015)

This is a project that has been undertaken by Bradford District Care NHS Foundation Trust, with the purpose of reviewing and consulting on the linguistic and cultural appropriateness of the ReQoL questionnaire with both South Asian and Polish mental health service users, while it is still in development. Researchers have been conducting interviews and focus groups with these service users within the Bradford district to get their views. The study recruited 22 participants in a combination of 7 interviews and 3 focus groups.
The anticipated impact of this research is to ensure that BME groups are actively included in research where they are currently under represented, but also to set a precedent for ensuring cultural sensitivity and appropriateness of measures while they are still in development rather than retrospectively.


 Meeting of governance groups: (July 2015)

Meetings of all the ReQoL governance groups took place throughout June and July to review and consider the results of stage 4a as follows:
  • The ReQoL Advisory Group on Fri 19th June 2015
  • The International Advisory Group on 23rd and 24th June 2015
  • The ReQoL Expert Service User Group Mon 13th July 2015
  • The ReQoL Scientific Group Mon 13th July 2015
Meetings with psychometric experts took place on the 5th and 18th of June 2015.

The ReQoL research team would like to thank all members of these groups which include expert service users, clinicians, psychometric experts and researchers for their participation and valued contributions. Items (questions) were selected for validation in stage 4B based on feedback and decisions made by the governance groups.  

Recruitment in stage 4a: (June 2015)

Recruitment of service users in stage 4a was extremely successful with NHS Trust targets being exceeded. A total of 2261 service users recruited.
  • NHS Trusts, 1,328
  • CAMHS, 23
  • GP, 145
  • Voluntary sector, 59
  • Online recruitment panel, 320
  • Online recruitment panel (no mental condition), 200
  • CASPER trial cohort, 186
Top 5 recruiting trusts as follows: Central and North West London, South Staffordshire and Shropshire, Rotherham Doncaster and South Humber, South West London and St Georges Trust, South West Yorkshire Foundation Trust.

The ReQoL research team would like to thank everybody who participated in stage 4a and everyone involved in the recruitment of service users. 

 Extending ReQoL to young adults and adolescents: (May 2015)

During development of ReQoL the research team found there was interest in whether the measure could be used with young people aged between 16 and 18. Stage 3a was repeated, face to face interviews and focus groups were carried out with  16 – 18 year olds  recruited from Child and Adolescent Mental Health Services (CAMHS). Participants were asked to reflect on the relevance and wording of  61 items. The findings are being used to inform the item selection for the final ReQoL measure.

(March 2015)

A questionnaire of 61 items ready for psychometric testing was finalised by mid-February. Data collection has begun and the first participant was recruited online on February 24th at the South Staffordshire and Shropshire NHS Foundation Trust. 

We have obtained R&D permission at 10 other trusts and data collection is progressing well.

Data collection from a commercial online patient panel is almost complete. 
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